Tuesday, April 29, 2014

Update

It's been a while and so much has happened.
Jack is now 4 months old. He's rolling over and still a very happy little boy. We've had a few issues the past 2 months. We're going back to children's hospital to see the cardiologist again. Jack went pale a few times and his lips turned blue once while he was sleeping. I can't even describe how I felt seeing that. I looked at him laying there pale and with blue lips. I thought I'd lost him. I went to pick him up and my first thought was that he was warm. I woke him up and after a few minutes his colour fully came back. I've also noticed that his limbs go blue randomly. Hopefully we will get in soon and have some answers.

He spent 5 days in the hospital recently. He had a fever of 104 (40) for 5 days starting on a Sunday afternoon. Wednesday morning I took him to emerg and they did a chest xray, blood work and urine sample. All came back fine except a few white blood cells in his urine. The doctor we saw set up an appointment with a paediatrician for that Friday and sent us home. Because he was happy and we were able to bring the fever down with tylenol and advil he felt Jack was ok, in fact the only reason we were going to see the paediatrician was because of the holes in his heart gives him an increased risk of endocarditis. I had a bit of a breakdown Friday at 3am his temp was 104.2 so I was giving him a bath to bring it down. That afternoon I took him in for the appointment at the hospital at 2pm. I asked the nurses for some more tylenol as he was now able to have another dose. I didn't realize the paediatrician was standing there too and was shocked he still had such a high fever. She took one look at him and immediately told me we'd be admitted and he'd be staying for a least a few days. He looked so sad. He was very lethargic and just laid there staring in the distance with his eyes glazed over. They redid all the blood work, chest xray and urine and all came back fine except the urine with a few white blood cells. We also did a lumbar puncture to rule out meningitis since they had no clear cause of the fever, which came back negative thankfully. His blood work showed elevated white blood cells and his crp was also high which the doctor said means it's likely bacterial. They weren't able to get an IV in so since he was eating well we decided the IV wasn't necessary and they gave him antibiotics through injections in his thigh once a day. The fevers went away slowly the over the next couple days and we were discharged Tuesday afternoon after his 5th dose of antibiotics. We were given another 7 days of oral antibiotics for him to take to make sure the infection is well and truly gone. The paediatrician is a little stumped as to where the infection was. The only thing that came up was a few white blood cells and minimal growth of the same bacteria in both samples. However if it truly was a UTI both samples should've had a ton of white blood cells and significant bacterial growth. We are going for a renal ultrasound on the 15th to make sure everything's ok with his kidneys and following up with the doctor the week after. Otherwise he's still his happy self. He's such a laid back easy going baby and I love him so much.

I went back to work last week. So far it's been going really well. Everyone thought I was crazy for going back with a 4 month old when I could be off for another 8 months but I really do feel like me going back to work and Dan taking the 35 weeks parental leave was by far the best decision we could've made. When he was working he was gone for 11 hours including commute time. Now I work 5 and we get the rest of the day to spend as a family, on our own or doing whatever we want. Dan, the kids and myself are all so much happier since the return to work.

Lauren is doing amazing. She is becoming such an independent little girl. She'll be going to pre school in September. She's still an amazing big sister and absolutely adores Jack and I know he feels the same way. I'm so proud of her.

Yesterday marked 4 years since we lost Hailey. We bought flowers and had cupcakes.